Stories

Uveitis isn’t common and it’s not well known. However, stories of people living with uveitis are out there!

• Morris Twp. woman raising money to fight eye disease
• A Woman Fights to Save Her Sight from Uveitis > Stories at Yale Medicine
• Amy Dixon USA: Blind Athlete, Speaker and Patient Advocate
• OIUF’s My Experience with Uveitis: Various stories from patients
• Olivia’s Vision: Personal Stories
• ‘I was blind in one eye’: Black Swan star Mila Kunis reveals her secret health struggle
• Uveitis, a rare eye disease, can blind people if not caught early

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Support

Many larger clinics have in-person support groups. Online support groups can be helpful but can be a bit depressing in my experience, depending on the group. Advice from individuals in groups should never be taken in place of, or without consulting, your doctor.

• OUIF Support Groups
• Iritis.org Support Forums
• Olivia’s Vision Forum
• Reddit – Uveitis

Facebook Groups in addition to OUIF’s FB Groups:

• Uveitis the Eye inflammation group
• Uveitis worldwide awareness support for adults & parents with kids

Low Vision Resources

Living Well with Low Vision by Prevent Blindness.org

Resources for the visually impaired by Allaboutvision.com

Visionaware.com

Enhanced Vision’s Low Vision Resources By State